Over 65s: Tell your meningitis story

LEADING meningitis charity Meningitis Now is after your stories about the disease – if you are over 65-years-old.

As part of a new campaign to better understand the effect of the illness on older people, the charity is keen to hear from anyone in this age group who had meningitis after they turned 65. They also want to hear from the children or even grandchildren of people in this age group if they can tell their stories for them.

It is all part of a new strategy to try and reach as many people in the country as possible who have had the devastating disease and offer ongoing support. While most people usually associate meningitis with babies and students, older adults are also very vulnerable.

According to Meningitis Now CEO Dr Tom Nutt, many people in this age group don’t realise they are at risk from the disease.

“When you have a baby you are told about meningitis and what to look out for, all the signs and symptoms,” he said.

“And then you get the same message when your children leave home for university or college when again they are in an at-risk group.

“But the third group who are more vulnerable to meningitis often don’t even know they are at risk – and that’s older adults.

“We realise that people in this age group are already having to deal with an increasing risk of different illnesses so we are just one of many – which makes it hard to get the message out.

“But meningitis can hit so fast and be so devastating we really believe it is worth older people, as well as their relatives and carers, being aware of the signs and symptoms of the disease and seeking urgent medical advice if concerned.”

As well as wanting older people to be aware about how the disease might affect them, Dr Nutt said Meningitis Now was keen to understand how the charity could best support them.

“We are looking for ways to reach more people who are affected by the disease so that we can offer them our support,” he said.

“As well as talking to them about the after-effects of meningitis we have lots of ways we can help them including with funds for things like therapies and specialist equipment.

“So, if you or anyone you know is in this age group and have had meningitis please get in touch and tell us your story – we would love to hear from you and we would also love to offer you our support.”

To share your meningitis story with Meningitis Now and help improve the charity’s support to older people please visit the website here: https://www.meningitisnow.org/support-us/news-centre/share-your-story/

Case Study

Barbara O’Meara, 75, thought she had caught a cold when she first started to feel ill aged 71 but what happened next was the start of a very scary journey. Her daughter, Lucy O’Meara, from Grimsby, told her story to Meningitis Now:

“We had been away on holiday and my partner and I got engaged. I rang my mother to tell her the news, she sounded very croaky on the phone but said she just had the start of a cold. I told her to rest up, and we exchanged texts. Everything seemed okay.

“Two days later we arrived home and that evening my mother’s friend rang to tell me she had been admitted to intensive care with a suspected stroke. Hospital was 1.5 hours away from our home, so we drove off after receiving the news at about 10pm.

“When we got to intensive care at Pilgrim Hospital in Boston, Lincolnshire, my mum was unresponsive apart from a few coughs and groans. We hadn’t been told it may be meningitis and I spent hours resting my head next to her on her pillow, hugging and talking to her.

“My brother arrived in the early hours from Bristol and the doctors then came to talk to us. They told us it was meningitis and the chances of her surviving were very low. That morning she was intubated and put into a coma. The next day there were no improvements, but she bit through her breathing tube so she had a tracheostomy fitted.

“Doctors tried to wake her but had no success – we were then told the likelihood was she would not survive and at best may be in a vegetative state for the rest of her life. A week and a half went by, and they managed to wake my mum. After two says she started to speak. The first thing she was look at my engagement ring and grin.

“Mum was moved on to a general ward where she suffered with hallucinations at night and was extremely distressed. She had to learn to walk again. Mum has been left completely deaf in one ear, but continues to live independently on her own. She works two days a week in a charity shop and is an inspiration to everyone who knows her. Mum has always led a healthy, active lifestyle and even now continues to walk her dog for miles every day. She never expected anything like this to ever happen to her”.